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They can change clinical practice but need evaluation
Research ethics committees, both local and for
multicentre research, are now well established in the United Kingdom.
Clinical ethics committees, which deal with issues that arise in
clinical practice, are a more recent phenomenon. Earlier this year
people from 14 clinical ethics committees within the United Kingdom met to compare their experiences The first clinical ethics committees in the United Kingdom developed
for a variety of local reasons. Some were an institutional response to
one or two problem cases. Others developed because a few clinicians
were particularly concerned with, and interested in, the ethical
aspects of clinical practice. Now that medical ethics is part of the
core of medical education,1 and with the high profile of
medical ethics in the media, clinicians are increasingly aware of the
ethical dimensions of practice. The medical profession is also under
mounting pressure to ensure high standards of ethical practice.
Inevitably, this will mean developing clear processes for determining
and assessing those ethical standards. Clinical ethics committees at
the level of NHS trusts, health authorities,2 and primary
care groups are likely to play an important part. Professional bodies
will want such processes to be in place; the courts may consider them a
part of due process; and clinical governance will need to include
ethics within its remit.
Most published data on clinical ethics committees (often called
healthcare ethics committees) come from the United States, where such
committees have existed since the early 1980s. The Joint Commission on
Accreditation of Healthcare Organisations requires hospitals to have a
mechanism for addressing ethical issues in providing patient care, and
it recommends a multidisciplinary ethics committee.3
Nursing homes and long term care institutions also have developed
committees in the United States.4
Clinical ethics committees in the United States typically perform one
or more of three functions5: (a) individual
case consultations in response to requests from clinicians or
occasionally from patients or their families; (b) providing
ethical input into hospital policies and developing guidelines; and
(c) education of health professionals within the
institution. In practice, case consultation is more likely to be
carried out by individual ethicists or increasingly by small
multidisciplinary teams which may include ethics committee members as
part of the team.6
Clinical ethics committees, and other ethics support services, are
developing in Europe and Australia. In the Netherlands clinical ethics
committees are usually combined with research ethics committees,
and in Australia many research ethics committees report that they also
provide ethics advice on clinical issues.7 In Germany the
Christian association of hospitals (representing about a third of all
German hospitals) has recommended that all hospitals in the association
should have a clinical ethics committee.8
There are few published data on United Kingdom clinical ethics
committees, though hospital committees have been described in London,
Oxford,9 and Nottingham10 and more recently
in a small NHS trust including a general practitioner hospital and community services.11 We are currently studying the
position of clinical ethics support services in the United Kingdom.
Preliminary results suggest there are at least 20 committees throughout
the United Kingdom and several NHS trusts are considering
establishing a committee in the near future. United Kingdom committees
usually report directly to the trust board, or are a subcommittee of
another hospital committee. Most are in acute trusts, although
there are a few in community trusts and at least one in an ambulance trust.
Established committees tend to follow the North American model. Case
consultation is less developed than in the United States, and most
committees in the United Kingdom see ethical input into policy and
guidelines as their main function. Indeed, American experience suggests
that a model other than a committee is required for case consultation,
and some committees in the United Kingdom are looking at this.
Clinical ethics committees can change clinical practice through policy
development and case consultation, and indirectly through education and
raising awareness of ethical issues throughout the trust. But
evaluation is needed to determine whether these committees are
influencing clinical practice. There have been no rigorous studies in
the United States evaluating healthcare ethics committees and ethics
consultation,12 possibly because of the disparate nature
of these services. If these committees are to develop effectively, they
will need to communicate closely with each other to share experience
and to establish the basis for systematic evaluation and research.
Oxford Centre for Ethics and Communication in Health Care
Practice, University of Oxford, Oxford OX73 7LF
(anne-marie.slowther{at}ethox.ox.ac.uk)
at a time when the pressure for such committees, or other mechanisms for dealing with the ethics of everyday
practice, is growing.
Tony Hope
| 1. | General Medical Council. Tomorrow's doctors. London: GMC, 1993. |
| 2. |
Hope T, Hicks N, Reynolds DJM, Crisp R, Griffiths S.
Rationing and the health authority.
BMJ
1998;
317:
1067-1069 |
| 3. | Joint Commission on Accreditation of Healthcare Organisations. Accreditation manual for hospitals. Oakbrook Terrace, IL: Joint Commission on Accreditation of Healthcare Organisations, 1992. |
| 4. | Meece K. Long term care bioethics committees: a cooperative model. In: Spicker SF, ed. The healthcare ethics committee experience. Malabar: Kreiger, 1998:380-384. |
| 5. | Blake DC. The hospital ethics committee. Health care's moral conscience or white elephant? Hastings Center Report 1992; 6-11. |
| 6. | La Puma J, Toulmin SE. Ethics consultants and ethics committees. Arch Intern Med 1989; 149: 1109-1112[Abstract]. |
| 7. | Macneill PM, Walters J, Webster IW. Ethics decision making in Australian hospitals. Med J Aust 1994; 160: 63-65[Medline]. |
| 8. | Katholischer Krankenhausverband Deutschlands e V. Ethik-Kommittee im Krankenhaus. Freiburg: KKD, 1997. |
| 9. | Meslin E, Rayner C, Larcher V, Hope T, Savulescu J. Hospital ethics committees in the UK. HEC Forum 1996; 8: 301-315[Medline]. |
| 10. | Watson AR. An ethics of clinical practice committee: should every hospital have one? Proc R Coll Physicians Edinb 1999; 29: 335-337. |
| 11. | Wood K, Ellis S. A clinical ethics committee in a small health services trust. J Med Ethics 1999; 25: 420[Medline]. |
| 12. | Tulskey JA, Fox E. Evaluating ethics consultation: framing the questions. J Clin Ethics 1996; 7: 109-115[Medline]. |
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