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David Shenk
Harper Collins, £15.99, pp 301
ISBN 0 00 257174 9






Rating: 


Journalist David Shenk has produced an
insightful account of the experience, science, history, and potential
future of Alzheimer's disease. He has also constructed a powerful
challenge to our existing attitudes towards life, disease, and the
direction of medical "progress." All this is achieved with
intelligence and objectivity in measured, yet compelling, prose.
Shenk contends that "a sharp unravelling of memory and mind" has
been associated with old age throughout history. Only with Kraeplin's
description in 1910 of "Morbus Alzheimer" did senility become
defined as a disease. The construction of Alzheimer's as disease and cultural demon has stimulated a search for a medical cure,
but it has also reduced the condition to "a plain horror, an utterly
unhuman circumstance." Shenk posits the opposite, claiming that the
condition is emphatically human and that, in fact, it emphasises our
humanity. He points, for example, to the "beautiful, sensual, and
exuberant" artwork of slowly dementing abstract painter Willem de
Kooning. More persuasive is the voice of a person with Alzheimer's
describing how the impairment of memory brings a more dramatic
involvement in the present: "Everything seems richer . . . we can appreciate clouds, leaves, flowers as we
never did before."
For those of us with memories more or less intact, Shenk asserts that
we might recognise in Alzheimer's "perhaps the most poignant of all
reminders of why and how human life is so extraordinary." It allows
us to perceive life's meaning as we witness its gradual loss, he suggests.
While those with Alzheimer's descend in physicality and faculty,
they and their caregivers may spiritually transcend their condition and
circumstances by finding a renewed humanity. The author's hope is not
that that will overcome the limitations of our humanity, but that we
will "find comfort" in them. He consequently values rehabilitation
programmes for people with Alzheimer's and carers over a cure for the disease.
Shenk has risen above the alarmist account of Alzheimer's that we
might expect a journalist to write for a lay audience. He offers more
than a tale of the devastation wrought by dementia and the desperate
need for a cure.
Andrew Moscrop Edinburgh
University
What can you learn from this BMJ paper? Read Leanne Tite's Paper+